The Child Growth Foundation http://www.childgrowthfoundation.org/forum This is an XML content feed of; The Child Growth Foundation : Last 10 Posts Thu, 09 Sep 2010 03:36:21 +0000 Tue, 07 Sep 2010 22:26:37 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 8.04 30 www.childgrowthfoundation.org/forum/RSS_topic_feed.asp RSS/IUGR/SGA : Leg Length Difference http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=657&PID=4340#4340 Author: lilsas
Subject: Leg Length Difference
Posted: 07 Sep 2010 at 10:26pm

Sophie and Matthew,
 
Thanks both for your replies, they are helpful.  It's reassuring to know that potentially the difference may reduce a little and interesting to hear how the difference affects you now Matthew.  Hopefully if we continue with the Orthotics then she won't experience much discomfort in the future.
 
Thanks again
Jill
]]> Tue, 07 Sep 2010 22:26:37 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=657&PID=4340#4340 MPHD/GHD : GH stimulation test made levels FALL?! http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=661&PID=4339#4339 Author: fairiesinmyhead
Subject: GH stimulation test made levels FALL?!
Posted: 07 Sep 2010 at 7:23pm

We have finally got the results of DD's second hormone stimulation test. She "failed" the first nearly 2 years ago. Anyway, this time the pre-arginine results were only just below normal, at 11.9 I think, and yet the results after the drug was given dropped dramatically to 3.4. Has anyone else had anything like this? The consultant couldn't explain it at all and I think her highest result last time was 8 point something. However, he suspects her thyroid is implicated as the results for that were "borderline".
We've got to wait for an MRI now and see how she grows over the next 4 months, as she has just had (by her standards) a growth spurt which has made her just touch on the very bottom red bit of the growth scales! Her bone age is well ahead of her chronological age, too, which complicates things further.
We know no-one will have all the answers, but just wonder if we are the first to get a weird result like this? Height isn't the key issue for us, it's her delayed muscle development which makes it hard for her to do simple day to day tasks like flush the loo.
]]> Tue, 07 Sep 2010 19:23:49 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=661&PID=4339#4339 MPHD/GHD : Help Needed. http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=660&PID=4338#4338 Author: Shari
Subject: Help Needed.
Posted: 06 Sep 2010 at 8:53pm

I have a 10 years old sister and she is living with my parents back home in Asmara, Eritrea. That is in the Eastern Africa. She has been diagnosed with GHD. It can not be treated in Eritrea.
 
Can anyone suggest any foundations or organisation who can help us? I would very much appreciate it.
 
Thank you.
]]> Mon, 06 Sep 2010 20:53:32 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=660&PID=4338#4338 General growth related topics : my sons height and weight http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=659&PID=4337#4337 Author: ruthb1
Subject: my sons height and weight
Posted: 03 Sep 2010 at 9:43pm

Hi,  I am a newbie here and as I have scrolled through the site I cant seem to find anything relating to what is concerning me.
 
My Son Alex is 8 years old, he weighed 9llb at birth and I had a normal delivery no complications etc.
 
Alex has always been a big child but I just dont know if his height and weight are anything to worry about.  He is 5ft 1, size 5 adult shoe and weight is 8st.
 
my eldest son who is nearly 11 is not even 5ft weight about 5 stone
 
both myself and my partner are not overweight, my height is 5ft7 partner 5ft 10
 
any help greatly appreciated
 
 
 
]]> Fri, 03 Sep 2010 21:43:41 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=659&PID=4337#4337 RSS/IUGR/SGA : Constitutionally small, SGA or IUGR?? http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=629&PID=4336#4336 Author: gemmahunt25
Subject: Constitutionally small, SGA or IUGR??
Posted: 03 Sep 2010 at 4:53pm

Hi georgie, thanks for your reply! I have only just noticed it in my emails.  Its funny Libby was born by emergency section on 16th July at 35 weeks weighing 3lbs 6ozs, the same day you replied due to an irregular CTG, she was kept in special care for 2 weeks 3 days and let out at 3lbs 11ozs. She had no problems other than her size the doctors just wanted to make sure she fed and put on weight well. Ellie has more or less caught up with other babies of her age. The doctors still dont know what is causing my babies to stop growing its very odd that they do not have an answer, I dont think i'll be putting myself thro it again! Libby is now 7 weeks old and weighs 6lbs 9ozs so has done amazing since being out. Congratulations on your baby boy hope he is doing well x ]]> Fri, 03 Sep 2010 16:53:00 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=629&PID=4336#4336 RSS/IUGR/SGA : Leg Length Difference http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=657&PID=4335#4335 Author: MattC
Subject: Leg Length Difference
Posted: 03 Sep 2010 at 11:12am

Hello, I dont think I can scientificallyanswer your questions but I can give you my personal experience. I was diagnosed with RSS when I was 5 years old andI believe when I was 7 my leg difference was approximately 20mm, at this time my shoes were built up to compensate. As I went through puberty my leg length difference reduced to about 10mm. It has stayed at this length ever since I am currently 28. I started GH when I was 5 and continued through until I was 16.

My leg length at the moment only causes me discomfort if I stand for very long periods (more than 3-4 hours), without using built up shoes. I have noticed that my general posture is slouched to one side resting more on my shorter leg. So far I have no back problems arising from this.

I was offered to have my leg lengthened but at the time I was playing sports and didnt want to go through the process which my parents graciously gave into.

Not sure how much this will help:)


Matthew



Edited by MattC - 03 Sep 2010 at 11:13am]]> Fri, 03 Sep 2010 11:12:40 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=657&PID=4335#4335 RSS/IUGR/SGA : Chromosome microarray? http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=658&PID=4334#4334 Author: fiestgal
Subject: Chromosome microarray?
Posted: 02 Sep 2010 at 10:52pm

Thank you, he goes in on Monday for the blood samples.

Good to hear your daughter's results were all fine.
]]> Thu, 02 Sep 2010 22:52:29 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=658&PID=4334#4334 RSS/IUGR/SGA : Chromosome microarray? http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=658&PID=4333#4333 Author: lilsas
Subject: Chromosome microarray?
Posted: 02 Sep 2010 at 10:48pm

Hi, our daughter has recently had the results of this test (all normal!) and yes it did take about 6 months.  Bloods in January, results in June.  It's hard waiting.  We didn't get any 'prelim' results I'm afraid.  Good luck J]]> Thu, 02 Sep 2010 22:48:31 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=658&PID=4333#4333 RSS/IUGR/SGA : Chromosome microarray? http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=658&PID=4332#4332 Author: fiestgal
Subject: Chromosome microarray?
Posted: 02 Sep 2010 at 10:23pm

Has anyone had this for their child? Connor was 2lb 11 1/2 oz at 34+6, severe IUGR. He is 14lb now at 12months of age. He has for the last month been sitting unaided.

We had an appointment with a geneticist last month to rule out RSS. That has been ruled out now but they are doing a chromosome microarray testing to check he has no underlying syndromes. I have been told the results will take 6 months. Do the results really take this long, will I have any preliminary results before hand? 
]]> Thu, 02 Sep 2010 22:23:16 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=658&PID=4332#4332 General growth related topics : Karyotype http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=638&PID=4331#4331 Author: Emmarocky
Subject: Karyotype
Posted: 02 Sep 2010 at 9:14pm

We have had Lara's results back and her Karyotype did not show Turners. The Dr's are still going to keep an eye on Lara as she is so very little for her age and monitor her for a while and see how she grows as they think somthing else may be causing her height. Thank you so much for your support over the past few weeks it has helped more then you can know. I was suprised that I had not heard of Turners before this as I would have though 1 in 2500 is not that rare.  I have been so happy to hear about your girls and how well they are doing, I wish them and you loads of happiness for the future. Em x]]> Thu, 02 Sep 2010 21:14:46 +0000 http://www.childgrowthfoundation.org/forum/forum_posts.asp?TID=638&PID=4331#4331