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Advisory
Centre for Education
Telephone: 020 7354 8318
Advice Line: 0808
800 5793
ace-ed@easynet.org.uk
www.ace-ed.org.uk – advice service
and offers direct help to parents dealing with problems with schools
and LEAs
The British
Thyroid Foundation
Telephone: 0870 770
7933
CAH
Support Group
(Congenital Adrenal Hyperplasia)
Telephone: 01525
717536
CHILD
(National Infertility Support Network)
Telephone: 01424
732361
Connexions
www.connexions.gov.uk
has local
offices providing advice, support and information on learning, careers
and health.
Telephone: 0116 249 4461
www.ukccsg.org
– a helping hand for families of children and young people with
cancer.
Contact a Family
Telephone: 0207608 8700 Helpline: 0808 808 3555 e-mail
info@cafamily.org.uk
www.cafamily.org.uk - brings families
whose children have disabilities together – particularly rare
conditions.
Council for Disabled Children
Telephone: 020 7843 1900
www.ncb.org.uk/cdc
- provides information and written publications.
Department for Education and Skills
Telephone: 0870 000 2288
www.dfes.gov.uk
- can provide the Code of Practice for assessing special education
needs.
Department of the Environment
Transport and the
Regions PO Box
236 Wetherby. LS23 7NB – free literature - provides leaflet on
European parking card.
DIAL UK
Telephone: 01302 310123 e-mail:
enquiries@dial.org.uk
www.dialuk.org.uk - DIAL is a
national network of disability information and advice services. They
can provide a list of local DIAL groups in England and Wales.
Disability Alliance
Telephone: 020 7247 8776 e-mail
office.da@dial.pipex.com
www.disabilityalliance.org - provides
advice and information on social security benefits for disabled
children and adults. Publishers of the Disability Rights Handbook.
Disability Law Service
Telephone: 020 7791 9800 e-mail:
advice@dis.org.uk - offers free legal
advice and information to disabled people.
Disability Rights Commission
Helpline: 08457 622 633
e-mail:
enquiry@drc.gb.org
www.drc-gb.org
provides information and advice on the Disability Discrimination Act
1995.
The Enuresis Resource and Information Centre
(ERIC)
Telephone: 01179 603060
www.eric.org.uk
Family Fund Trust
Telephone: 0845 130 4542 e-mail:
info@familyfund.org.uk
www.familyfund.org.uk - provides
grants for severely disabled children.
Gabbitas Educational Consultants Ltd
Telephone: 020 7734 0161
www.gabbitas.co.uk
- provides advice on educational matters and produces a guide to
special needs education in the UK.
Independent Panel for Special Educational Advice
(IPSEA) Telephone: 0800
0184016
Motability
Telephone: 01279 635666
www.motability.co.uk
- allows you to use higher rate mobility component to hire or purchase
a car.
Perthes Association
Telephone: 01483 306637
www.perthes.org.uk
– Hip abnormalities/Multiple Epiphyseal dyslplasia/Osteochondritis
(inc. Severs disease, Kohler’s Osgood Schlatter’s & Scheuermann’s
disease)
The Pituitary Foundation
Telephone: 0870 774 3355
www.pituitaryorg.uk
Prader-Willis Syndrome Association
Telephone: 01132 365676
www.pwsa.co.uk
Raising Kids
www.raisingkids.co.uk
Restricted Growth Association
(RGA)
www.rgaonline.org.uk
The Scoliosis Association (UK)
(SAUK)
Telephone: 0208 964 1166
www.sauk.org.uk
e-mail:
info@sauk.org.uk
Shared Care Network
Telephone: 0800 328 5050 e-mail:
shared-care@bristol.ac.uk
www.sharedcarenetwork.org.uk -
promotes family based short breaks for disabled children and young
people.
Skill:
National Bureau for students with disabilities
Telephone: 0800 328
505
www.skill.org.uk - provides
information about further, higher and adult education for students
with disabilities and helps develop opportunities.
SNAP! Childcare
Telephone: 0207 729 2200
www.snapchildcare.co.uk - recruitment
agency providing nannies and childcare workers for children who have
special needs.
STEPS
Helpline: 0871 717 0044
www.steps-charity.org.uk – Support
group for children with lower limb abnormalities.
The Child Growth Foundation can not accept
responsibility for the accuracy of this information, nor can we
guarantee their individual performance.
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