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Welcome to the website of the Child Growth Foundation (CGF), a leading UK charity focusing on children's growth. We also have a large and active adult membership.

Charity Number: 274325


On this site, you can find helpful information whether you are a parent whose child has a suspected or diagnosed growth problem, an adult or family member of someone with a growth or endocrine disorder, or a medical professional.

We aim to:

  • Support and encourage all children or adults with growth disorders, and their families, in every way we can
  • Promote and fund research into the causes and cure of growth and endocrine disorders, and publish the results
  • Educate the public and support/advise medical professionals, in the challenges those with growth and endocrine disorders are likely to face
  • Encourage medical professionals at all levels to monitor growth and development. We provide training and equipment to ensure that all growth measuring is undertaken accurately and appropriately

If you would like more information on the activities of the Foundation, or have any concerns and would like some advice please contact us.



Investigating the Cognitive Profile of Sotos Syndrome

We are now recruiting adults and children with Sotos to take part in our research which aims to investigate the cognitive profile of individuals with Sotos syndrome. The research is based at the University of Sheffield and is supervised by Dr Megan Freeth and Dr Elizabeth Milne. We are interested in hearing from families across the UK and we are hoping to recruit as many people as possible so that we can gain a really good understanding of the cognitive profile of Sotos syndrome. 

If you are interested in taking part, please complete this form:

You will then be sent a full information pack. If you have any questions, please email Chloe Lane:


We are pleased to announce that we have been awarded a grant from Genetic Disorders UK, to help towards the financing of our annual convention. 


Annual convention 2014 videos

During last years convention, members of the youth group interviewed CGF members and staff about the CGF. Have a look at the videos on the news page.

STAARS (UK) The Study of Adults and Adolescents with Russell-Silver Syndrome in the UK

Are you/is your child age 13 years and above and have a diagnosis of RSS? If so, we really would like to hear from you.

As some of you are aware, we are recruiting to ‘The Study of Adults and Adolescents with Russell-Silver syndrome’ (STAARS) at University Hospital Southampton.  We have now started seeing participants outside Southampton so if you are interested, we could arrange an appointment at your nearest genetics centre.  

We are collecting information on long-term health issues and growth in RSS, in order to help families to make the decision about treatment.  We are also looking at what it is like to live with RSS.  In order to find significant results we have calculated that we need to recruit 100 people with RSS to the study.  This really is our BIG challenge at the moment and we only have until the end of the year.

There is a single study appointment with Dr Kemi Sodipe, which includes a discussion, an examination and some blood tests.  

We feedback test results to participants after the visit and we contribute to travel expenses. 

We will report findings of the project, both in scientific journals, and directly to the CGF. 

For further information, please contact: 

Jenny Child - who will post information leaflets with full details.  Alternatively, please contact the STAARS team directly on:  There is also information on the website


Welcoming members with Weaver Syndrome -

The Child Growth Foundation is pleased to announce that it will now be offering advice and support for families and individuals with Weaver Syndrome.

'New triggers discovered in formation of pituitary tumours in children'

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Looking for Growth Equipment and Charts?

Visit our shop for all of your growth monitoring equipment requirements.

Click here for Charity Commission Information >>

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