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Helpline 0208 995 0257

Do you need to chat to someone about any concerns you have regarding your/your child’s growth? Do you need some general advice and a friendly, listening ear?

If so, then please call our helpline – 0208 995 0257.

The Helpline is available between:

9:30am – 4:00pm Monday to Friday

If your call is not answered immediately, you can leave a message and we will return your call as soon as possible.

Please leave your name and phone number with a brief message.


 

Announcing a new educational resource!!!  The link below will provide you with a downloadable copy of the brand new "Highlights and Summary" of the recent International SRS Consensus Statement made possible by RSS/SGA Research & Education Fund Division of the Magic Foundation and written by Jennifer Salem, Dr Emma Wakeling & Dr Irene Netchine 

CGF-Family_SRS_Consensus_.pdf


                          **A new information booklet now available to download** 

                                      Sotos_Syndrome_Educational_Guide.pdf


 Investigating Behaviour in Russell Silver Syndrome

An exciting new research project for children and young people with a genetic diagnosis of Russell Silver Syndrome.

Information_Sheet_Parent_RSS.pdf


 

Charity Number: 1172807

On this site, you will find helpful information whether you are a parent whose child has a suspected or diagnosed growth problem, an adult or family member of someone with a growth or endocrine disorder, or a medical professional.

We aim to:

  • Support and encourage all children or adults with growth disorders, and their families, in every way we can
  • Promote and fund research into the causes and cure of growth and endocrine disorders, and publish the results
  • Educate the public and support/advise medical professionals, in the challenges those with growth and endocrine disorders are likely to face
  • Encourage medical professionals at all levels to monitor growth and development. We provide training and equipment to ensure that all growth measuring is undertaken accurately and appropriately

If you would like more information on the activities of the Foundation, or have any concerns and would like some advice please contact us.


 

What is Silver Russell Syndrome?

This simple animation explains what we know about the condition and its features, and how it is diagnosed and treated.


Diagnosis and management of Silver–Russell syndrome

The first international consensus for Silver Russell Syndrome/Russell Silver Syndrome (SRS/RSS) has been established, led by Professor Irene Netchine.
Thirty six experts of Silver Russell Syndrome gathered in 2015 to validate all points relating to the diagnosis, management and treatment of Silver Russell Syndrome, to establish a global consensus, which doctors worldwide could refer to. 
Six parents of children with RSS/SRS were present, including Nick & Jenny Child from the CGF and representatives from the Magic Foundation (USA), Alice (Belgium) and Afif (France) to share their experiences and knowledge. The full consensus can be found here:

 http://www.nature.com/nrendo/journal/vaop/ncurrent/full/nrendo.2016.138.html


 


 Looking for Growth Equipment and Charts?

Visit the shop for all of your growth monitoring equipment requirements.

 

http://www.bsped.org.uk/

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