Charity Number: 274325
On this site, you will find helpful information whether you are a parent whose child has a suspected or diagnosed growth problem, an adult or family member of someone with a growth or endocrine disorder, or a medical professional.
We aim to:
- Support and encourage all children or adults with growth disorders, and their families, in every way we can
- Promote and fund research into the causes and cure of growth and endocrine disorders, and publish the results
- Educate the public and support/advise medical professionals, in the challenges those with growth and endocrine disorders are likely to face
- Encourage medical professionals at all levels to monitor growth and development. We provide training and equipment to ensure that all growth measuring is undertaken accurately and appropriately
If you would like more information on the activities of the Foundation, or have any concerns and would like some advice please contact us.
What is Silver Russell Syndrome?
This simple animation explains what we know about the condition and its features, and how it is diagnosed and treated.
Diagnosis and management of Silver–Russell syndrome
The first international consensus for Silver Russell Syndrome/Russell Silver Syndrome (SRS/RSS) has been established, led by Professor Irene Netchine.
Thirty six experts of Silver Russell Syndrome gathered in 2015 to validate all points relating to the diagnosis, management and treatment of Silver Russell Syndrome, to establish a global consensus, which doctors worldwide could refer to.
Six parents of children with RSS/SRS were present, including Nick & Jenny Child from the CGF and representatives from the Magic Foundation (USA), Alice (Belgium) and Afif (France) to share their experiences and knowledge. The full consensus can be found here:
Looking for Growth Equipment and Charts?
Visit the shop for all of your growth monitoring equipment requirements.